A good thing
Sep. 14th, 2006 10:36 am![[personal profile]](https://www.dreamwidth.org/img/silk/identity/user.png){kind=small}
yendiThe last week has been more than a little bit stressful. Having ![[livejournal.com profile]](https://www.dreamwidth.org/img/external/lj-userinfo.gif)
shadesong in the hospital, even for non-surgical issues, simply wasn't fun. Not knowing what they'd find (or if any of the seizures she was supposed to have would make things worse) kept us frustrated. Hell, we didn't even know when they thought they'd figure anything out. Toss out the fact that it's never easy for an eleven-year-old to not have her mom for a week (and Elayna has been an absolute trooper during this time, I've got to say), and a hectic time at work, and I think it's safe to say that my normally near-perfect blood pressure probably rose a bit last week.
That said, it was worth it. We don't have all the answers yet, but one direct result of the week was that her doctor has finally pulled her off Trileptal, which is possibly the worst drug ever. In the list of side-effects, the manufacturers of Trileptal need to insert a line that reads, "Trileptal may effectively shut downshadesong's brain. It wasn't that bad, but at times, it was close.
'song's been off the drug for a week now, and it's simply amazing how different she is. She's faster on the uptake; she gets less distracted; and she doesn't lose words nearly as often.
The analogy I used when talking to her this morning is that her brain used to be like a very fragmented hard drive, with pauses before accessing data. Now, it's like a brand new, blazingly-fast optical drive with near-instantaneous access.
Of course, this is also what she was like before the Trileptal.
In other words, I have my wife back.
And for that alone, I'm damned glad we went through the last week's trials and tribulations.
shadesong in the hospital, even for non-surgical issues, simply wasn't fun. Not knowing what they'd find (or if any of the seizures she was supposed to have would make things worse) kept us frustrated. Hell, we didn't even know when they thought they'd figure anything out. Toss out the fact that it's never easy for an eleven-year-old to not have her mom for a week (and Elayna has been an absolute trooper during this time, I've got to say), and a hectic time at work, and I think it's safe to say that my normally near-perfect blood pressure probably rose a bit last week.That said, it was worth it. We don't have all the answers yet, but one direct result of the week was that her doctor has finally pulled her off Trileptal, which is possibly the worst drug ever. In the list of side-effects, the manufacturers of Trileptal need to insert a line that reads, "Trileptal may effectively shut down
shadesong's brain. It wasn't that bad, but at times, it was close. 'song's been off the drug for a week now, and it's simply amazing how different she is. She's faster on the uptake; she gets less distracted; and she doesn't lose words nearly as often.
The analogy I used when talking to her this morning is that her brain used to be like a very fragmented hard drive, with pauses before accessing data. Now, it's like a brand new, blazingly-fast optical drive with near-instantaneous access.
Of course, this is also what she was like before the Trileptal.
In other words, I have my wife back.
And for that alone, I'm damned glad we went through the last week's trials and tribulations.
![[identity profile]](https://www.dreamwidth.org/img/silk/identity/openid.png){kind=small}
(no subject)
Date: 2006-09-14 02:40 pm (UTC)(no subject)
Date: 2006-09-14 02:44 pm (UTC)(no subject)
Date: 2006-09-14 02:47 pm (UTC)(no subject)
Date: 2006-09-14 02:50 pm (UTC)Yay!
(no subject)
Date: 2006-09-14 02:50 pm (UTC)(no subject)
Date: 2006-09-14 03:45 pm (UTC)(no subject)
Date: 2006-09-14 03:55 pm (UTC)(no subject)
Date: 2006-09-14 04:08 pm (UTC)Vroom!
(no subject)
Date: 2006-09-14 08:57 pm (UTC)But very happy for all three of you. How's Elayna reacting? She's grown up a lot since you were last this whizzy, does she even remember you being like this before? I have visions of her cowering in her room think "My Mom's become, like, this scary super-woman!"
Also? WOOT! =:o>
(no subject)
Date: 2006-09-14 05:23 pm (UTC)WOOT!
(and what a great post!)
(no subject)
Date: 2006-09-14 05:54 pm (UTC)That's a Very Good thing :) And i'm glad for both of you.
Been following the saga, when it got to the Trileptal
part a few days ago i was instantly reminded of all the drugs
advertised on tv and how the quickly shown list of *probable* side effects are always much worse than whatever the drug is supposed to treat.
They keep doing "designer drug" copies of best selling drugs
with a change here and there in the side chains so they can patent it and charge full price with no generics competing.
Everytime this happens of course the drug becomes unpredictable.
Glad she's off it now and back to normal :)
(no subject)
Date: 2006-09-14 06:14 pm (UTC)(no subject)
Date: 2006-09-14 09:59 pm (UTC)(no subject)
Date: 2006-09-15 12:05 am (UTC)(no subject)
Date: 2006-09-15 01:41 am (UTC)